Educate. Encourage. Empower.
Advances in Lymphedema Care Conference
Advances in Lymphedema Care Conference
Advances in Lymphedema Care Conference
Thanks to Amanda Sharon at 91.1 The Avenue Radio for talking to us about the November 23 Lymphedema conference!
All Things Lymphedema
Advances in Lymphedema Care Conference
Advances in Lymphedema Care Conference
Jennifer sits down with Hayley Tenpas of WHBY to talk about "All Things Lymphedema"
The Science Behind the Need for Compression Therapy for Lymphedema - It Can Save Your Life
The Science Behind the Need for Compression Therapy for Lymphedema - It Can Save Your Life
The Science Behind the Need for Compression Therapy for Lymphedema - It Can Save Your Life
Study finds cellular processes controlling the formation of lymphatic valves
The Science Behind the Need for Compression Therapy for Lymphedema - It Can Save Your Life
The Science Behind the Need for Compression Therapy for Lymphedema - It Can Save Your Life
Making Wisconsin History
Advances in Lymphedema Care Conferences
Premiering in 2018, Wisconsin's first and only Lymphedema conference for Lymphedema survivors, their supporters, and the healthcare community, all under one roof. Providing unprecedented direct access to noted Lymphedema experts, and national manufacturers of Lymphedema products.
Health, Education & Welfare's Compression Garment Fund
Wisconsin's first and only financial aid program helping Lymphedema survivors obtain their medically needed compression garments.
- Medicare provides no coverage
- Health insurance may not provide adequate or any coverage
- Healthcare systems do not provide financial assistance for compression garments.
The Shellie Stellrecht Award
Wisconsin's first and only award recognizing excellence in Lymphedema advocacy.
- 2018 - Dedication and presentation to Shellie's family
- 2019 - Presentation of award to Kate Hackett Baer
All Things Lymphedema
An estimated 10 million Americans live with Lymphdema – more than the combined total of Americans living with ALS, AIDs, Alzheimer’s, Parkinson’s, MS, and Muscular Dystrophy. Yet, the disease remains little known amongst the general population, and often misunderstood within the medical community.
What is Lymphedema?
A Potentially Life Threatening Disease of the Immune System
- Lymphedema occurs when a person's lymphatic system (part of our immune system) doesn't function properly.
- Lymphedema can affect any part of the body, head, neck, torso, arms, legs, etc. This photo depicts Lymphedema of the leg.
- There is no cure for Lymphedema. Once you have it, you have it for life.
How Lymphedema Develops
Categories of Lymphedema
- Primary Lymphedema occurs when people are born with this disease.
- Secondary Lymphedema can occur after physical trauma, or from surgery or cancer treatments, such as radiation therapy. An estimated 5 - 40% of breast cancer patients experience some form of Lymphedema. Those who have lymph nodes removed and/or have radiation are at an even higher risk of developing this disease.
Why a Turquoise Butterfly?
The turquoise butterfly is the international symbol for Lymphedema.
What You Can Do
- You've already made a great start - by being aware
- Learn all you can about Lymphedema - we've provided access to great information and resources
- Join us at our Advances in Lymphedema Care conferences
- Come and join us - volunteer, donate, contribute - be a part of our important work!
March 6th - World Lymphedema Day
Educate
With nearly 10 million Americans living with Lymphedema, chances are you probably know someone who is affected by this incurable, life-threatening disease.
Read More About Lymphedema https://www.linkedin.com/pulse/lymphedema-life-threatening-disease-youve-never-heard-edmondson
Scroll down to learn even more important information about Lymphedema.
Encourage
The chronic pain and disfigurement commonly associated with Lymphedema can have devastating effects on Lymphedema survivors. HEW is committed to encouraging people affected by Lymphedema, through our new and innovative programs and services:
- Advances in Lymphedema Care conferences - Wisconsin's first and only conference for Lymphedema survivors, supporters, and healthcare professionals
- The Compression Garment Fund - Wisconsin's first and only financial aid program for Lymphedema survivors
Read more about HEW's new and innovative work on behalf of Lymphedema survivors. Come and join us in our mission - we need your help!
Empower
Help to empower those affected by Lymphedema, by learning how to advocate on their behalf. For more information https://lymphaticnetwork.org/wld/
Additional Lymphedema Resources For You
Treatment of Lymphedema
Lymphatic Education and Research Network (LE&RN)
Lymphatic Education and Research Network (LE&RN)
Treatment of Lymphedema should be provided by a Certified Lymphedema Therapist (CLT), who has undergone specialized training in Lymphedema care.
Lymphatic Education and Research Network (LE&RN)
Lymphatic Education and Research Network (LE&RN)
Lymphatic Education and Research Network (LE&RN)
Lymphedema Treatment Act
National Lymphedema Network
National Lymphedema Network
Currently, many policies, including Medicare, do not cover the medically- necessary compression supplies used daily in lymphedema treatment. As a result, many patients who cannot afford compression supplies suffer from recurrent infections, progressive degradation in their condition and eventual disability.
Coronavirus/COVID 19 Resources for Lymphedema Survivors
Coronavirus & Lymphedema
Helpful information for Lymphedema survivors, including tips and best practices for protecting yourself, from the Lymphie Life website.
COVID 19 Guidelines for Lymphedema Survivors
From the Lymphoedema Support Network - UK, important information and guidelines for the Lymphedema community.
Additional Resources
For more information on Coronavirus/COVID 19 in general, see our webpage devoted strictly to Coronavirus/COVID 19.
Proud Recipient of Guidestar's Platinum Seal of Transparency
